John, thank you so much for publishing this. I was an archaeolog
ist just about to propose my dissertati
on when CFS finally smacked me down hard. Now I can just barely manage to work a few hours a week and keep my apartment somewhat close to clean.
I've spent years trying to convince doctors and family and friends and at times myself that *something
* was wrong; that I'm not just lazy or lacking in ambition or drive; in short, that this isn't a character flaw. Even harder has been accepting that this may be my reality for the rest of my life. Despite what society tends to want us to do - fight constantly
, spend all our energy on "getting better" it seems the healthiest thing is to accept things as they are and to plan for the future based on how we are now, not how we used to be or how we hope to be in the future. I find that frightens some people. It's as though acceptance is taken as defeat.
Anyway, to conclude my rambling - thank you again, John. Every voice sharing their reality is a blessing and a gift.
Read the Article at HuffingtonPost
3 comments:
That was very well said. Some of the same things can be said of MS and other chronic 'invisible' diseases.
I had a similar feeling when I read John Ratey's books about ADD - whoa, other people didn't need the panic of a last minute deadline to spur them into action? They just . . . did things? How weird of them, to not need the exoskeleton of supports I've assembled over the years.
2 words: Lyme disease. :O)
It might change your life.
www.ilads.org
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